Talk:MyData

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Some notes from MyData2017

Jouni's unedited notes. To be improved.

Wed 30 Aug 2017

Session1

Helena Haapio. Coded contracts can be visualised and also be understood by computers. This can reduce the content on 100 page contract to 2 key pages.

Mirko Tobias Schäfer. Utrecht data school. How to predict school dropouts and mamage them? Run by a company. Authorities do not understand the model or its inputs. Smart streetlights. What about privitising infrastructure? Who manages the data collected? How can cities negotiate with platforms (facebook airbnb amazon)? Joint force is needed. We need more public debate. Things go wromg: NL tax revenue service. No monitoring even with private companies. Deda data ethics decision aid. Lue tarkemmin!

Maria Macocinschi turku. Balance between individual with data and company. Redress mechanisms for data protection. Pims. Personal information mamagememt systems. Pds. Personal data stores. How do they actually work? Control should not be individual rather than collective. Reason: i dividuals do not aleays behave rationally.

Tuukka lehtiniemi. Make it happen and make it right Is data an asset or a right? This dispute goes on in mydata movement.

Session2 ethics of mydata and AI (juuso parkkine )

John havens. Prioritizing human wellbeing for ethical AI Women are not seen in gdp. Ai should measure the invisible. Ethically designed AI. P7010 report We need things like better life imdex. Beyond gdp declaration. Gallup: we have to ask what people think subjectively.

Pernille tranberg dataethics.eu 80 percent of ad money in dk goes to google and facebook Data ethics is to live up to the values not just obey laws. Why dont you use wired but fb messenger? Private by design Use cliqz Apple always have privacy expeets when designing. Snips.ai Lego has a noncreepy website for children.

Katryna Dow. Meeco. Ai friend or foe. Twins born in 2030 one human one ai. Existing tech is already now beyond our understanding We are at crossroads. It all depends on our ethical rules. Human rights must be coded into ai. Its not only about privacy. Its about power Ieee p7006 working group How can we reduce complexity in decision making on i dividual level about privacy setting.

Session 3 government

Kirsi pulkamo trafi. Traffic personal data Easy access to data Enable databased services Easy trials. Trafficlab.fi

Ville sirviö niis nordic institute for interoperability solutions. Fi+ee collaboration for egovernment solutions. Xroad=palveluväylä Read aleksi knuutila mydata in oublic sectorb12.4.2017

Thu 31 Aug 2017

session 1

Janne viskari väestörekisterikeskus? Suomi.fi How to get rid of silos? Collaboration across organisations. Use xroad. [Can xroad be used within thl? Could it replace valtori driven access control?

Stuart Lacey trunomi. Consent redefined. Ownership: title. Rights. Asset-liability flip has already happened. Utility is lost with anonymitisation. Your custeomers are the best source for rich first hand data. So get consent. Content is king -> consne t is king Anticonsent myth arguments: 1 you have to click all the time- people like it. Legitimate interest. Consent is exception - its not. Two degree solution. One there one back Open trust lead to good business.

Sessio2 health Sari stenfors aalto. Health and blockchain. Healthcare data aggregator is the key challenge. Other imoortant: ai, basic income.

Thomas holm. Noona. Kaufmann agency Human centerimg healthcare. We need to focus on user experience and needs and not too much on administratiom and technologies.

Visa Honkanen. Helsinki u hospital. We should aim to refine data rathdr than sell it to big companies.

Phillip Windley. Verifiable claims. Three parties. Claim issuer, claim owner, claim verifier. Cryptography enables to put a verification into the claim so that the verifier does not need to contact the issuer to make sure it is valid. Sovrin foumdation proposes public ledgers that are not costly. No need for mining.

Manreet nijjar. Doctors link. Problem with lack of doctors in NHS. Poor doctors from agencies to fill gap. Time goes to check credentials. Doctors link makes these automatic.

Michele Nati.

Session2 health

Angela brand. Citizen controlled data governance for secondary use.

Antti kettunen. Tieto. Hacking healthcare Bit.ly/smarthealth-thinktank

Cozy.io Digi.me Sovrin Eezykeyz.eu

Session 3 . City examples on mydata

Francesca bria. Barcelona Citizen liberties is not service issue but rights. Bar elona has digital strategy produced with citizen consulgation. Housing health care mobility etc Europe has to sgep up to fight gafa king We want digital sovereignity seciruty and privacy Common platform for new fair services. CityOS Sentilo-bcn monitoring system. City data commons . Under trials Encrypted info steucgure based on tor network Decidim barcelona We need alternatives to airbnb and jber and have to do ghem togethee Data and algorithmic transparency Everything has to be aligned. Challenge! Barcelona.cat/digital

Ingi steinar ingason. National patient portal and api. Access to patient data for patients Both doctor and patient has access to patients data from all institutions. All distributed but intdrconnected. System called Hekla. Built in iceland. One website for all. Heilsuve99ra.is Digi.me is the first company to test open api. Later will be available to others. Could fi copy the system from is?

Herve groleas Cio of meteopole de lyon. Digital transition Data explosion. First cintwnts then seevices iot finally ai. Living lab to develop new services in collaboratkon Mesinfos pilot project. Has water info projects.

Cities have limited regulatory power. Uber has to open up data if they want to operate in finland. Selvitä mijin perustuu!

Session 4 use cases Heli?

Health care dan bailey. Patient centricity The patient is a constant in the info system. The patient should get a copy of all the data produced. Then ghey can controm it. Digi.me

Andy brooks. Suunto t6 fitness wearable. New ecosystem Started 2003. Strategy actionable data. Combine with lead users first 6-8 people Be transparent of the design Empower users

Fabian ? enedis in France 36M customers have smart electricity meters. Empowering. People start monitori g their consumption Portability. New games and applications Control. Consent given in a proper way Interopreability.

Jonna Fassbender. Shopping online Personalised one search point. StyleScript. It knows you by heart. It is a personal style profile. Based on ai. Gdpr is a major issue. But it is under solving.

Xavier lefevre. Frictionless permissioned data sharing Easy. Individual controls. Accurate. Secured. Example. Insurance data exchange

Maarten Looman. Qiy. Insurance example . Simplicity for users by solving compöexitiy in a scheme (backgroumd). Use app Dappre. Cmr. Customer manages relation.

Tristan Nitot. Cozy.io Health expense reimbursement.

Anna Renzo. My health my data mhmd is 3.4 Me eu project until 2019 Blockchain certified information Smart contracts Personal data accounts. Individual ownership Multilevel ...

Erwin Rooiijakers. Emergy data high freqjency (second level) Innowatts. Everyone has smart meters but data transmission is not standardised. -> solved Vendoe lockin -> Technical problems solved. Polomorphic encryption. Blockchain. Identity check

Peter k Wells. Open banking example. Open data institute Open banking standard.

Simon. Internetofme. Net I want to hear about use cases.

Lessons learned. Many experts had issues about implementation. Business models are not clear. How quickly will these cases go out of fashion. Many cases are national. Large retailers have data but no cases about those. Some supermarkets have been convinced to open data. They see that building ecosystems may protect against global huge competitors. We should share also failures. Many things have been tested. Not all works.

Fri 1 Sep 2017

Session 1

Valerie Peugeot. Our data. People are social animals

Mika Panzar. Different citizenships: political. Market. Data. /Vote. Choose. Share data. Biases. Find references! Railroad building in 1840-1890 resembles data economy. Overinvestment. Monopolies. Its no longer gafa its fatbag.

Linnet Taylor. Group privacy. Big data and the collective. Book 2017 Only identifiable data is important (?!) Gdpr says this but what about groups. Albert Seubers: Stratumseind project. Follows individuals without identity. Deidentified data tell a story. Enables group behaviour analysis. Sudan satellite data about massacres and village burns: Harvard project lead ro targeted further attacks to intact villages. Data about people like me are actionable data. You can influence people in a targeted way. Linnettaylor.wordpress.com Group data thinking helps to plan actions in short term We should always have plan b because the main plan is always prone to problems. How should group privacy impact the mydata declaration.

Session 2 gdpr debate

Aurelie Pols. Seat belt culture is like mydata now. Gdpr is the current baseline Edps.europa.eu european data protection supervisor We are starting to use concepts of rights roles and ... rather than data ownership. Data is the new electricity. Privacy is the new green Trust is the new currency

Tobias bräutigam. Bird & Bird Finland Problem solving is about listening undestanding and respect. This is for all stakeholders.

Guillaume Jacquart. Mesinfos. Portability: how to go beyond compliance?

Maija Rönkä. Lvm. Better data = better services.

Andre Walter. Baker McKenzie Amsterdam. Choice relates to consent while consequences relate to legitimate interests.

Geoffrey delcroix. Cnil. Innovation and foresights team. Regulation can produce innovation such as data portability.

Session 3 health case studies

Victoria fonsou. Www.Patientwho.com From greece. Cancer motivated to start patient peer system. Generate real world data and evidence. Only open to the core group of 16. Going to be public. There are dozens of websites for öatients. Victoria: non with social media.

Berit skjernaa. Alexandra institute denmark. Health data and privcy How do we ensure it? Methods. Anonymisation. Differential privacy. Secure multi party computation.

Eu2017.ee the digital health society. Task force 2 citizen-controlled data governance for secondary use. Iceland sold their health data to a company. Now that is going well but problems with people angry about lack of consent. Othe countries like finland scotland have moved more slowly.

Session 4 end

Molly schwartz. Conclusions Convergence. Ants are amazing social creatures. Semantic discussion was good. Measuring value is important. Slow layering (jogi) some things change quickly some not. Modular solutions. Gdpr. Points of tension (worms) informed consent. Individual responsibilith. Accountability: how to trust? Privacy esp group privacy. Data as liability (rather than asset) maybe leads to data minimisation. Missing points (butterflies) education and outreach. Black boxes and intellectual property. Data portability: who is goi g to lead? Property vs rights. Beyonf gafam eg salesforce or globa vs local solutions. Where are we going? How to include people and acknowledge cultural differences. Quantum chief has a good analogy of mydata.